An educational scholarship for cancer survivors diagnosed at 20 years or younger. Every person who lives with a rare disease is more than just a patient, Julia Jenkins, the foundations executive director, said in a press release. $3,000 scholarship to a Navy ROTC midshipman majoring in electrical engineering. Program awards scholarships of $1000 to fourth year undergraduate and graduate students who have a disability and are pursuing a higher education. Provides scholarships to high school seniors living with a chronic disorder and continuing their education at a college or university. A scholarship for high school seniors, undergraduates, graduates as well as international students with a documented learning disability. Applicants of all races, ethnicities, genders, and sexual orientations are encouraged to apply. A scholarship for people with hemophilia B to use for any type of post-high school education. A scholarship for students who have been diagnosed with lyme disease. Program provides financial assistance to children with a physical or psychological disabilities, or in the autism spectrum to help with child-canine services. Awards will be provided to 32 recipients for the Spring 2021 semester. Cancers, Cancer - All in a loved one, Mesothelioma. This award is for college-bound students (aged 17-25) with kidney disease whose academic career would benefit from financial assistance. Program provides two $500 scholarship to college and university students with a mobility disability. Preference is given to students with a documented serious medical disability. Megan's fund provides college and trade school scholarships to young adults who have had a diagnosis of hemiplegia since childhood. Program awards multiple scholarships to siblings of cancer patients pursuing higher education. Programs offers scholarship grants to children whose parent has been seriously or fatally injured in a work-related accident. Program offers scholarships for individuals with disabilities for the purpose of paying academic expenses for an aviation career. Lyme Disease, Chronic, Serious or Life Threatening Illnesses, Chronic, Serious, or Life Threatening Illnesses in Children. Scholarships for a current paid member of TSSUS to attend the 3-day National Turner Syndrome Conference held each summer in different cities across the United States. Rare Diseases . The #RAREis Scholarship Fund was established in 2020 to help adults with rare diseases to pursue their dreams through education. Provides scholarships to veterans or spouses of disabled veterans who have served in the United States military, including the Reserves and National Guard pursuing higher education. Program awards scholarships for students with or impacted by a loved one with mesothelioma pursuing higher education at a four-year college or university. Scholarships awarded every year to college bound high school seniors with superior academic and extracurricular achievements who suffer from a chronic disease or other serious challenge to physical or mental health. Scholarships offered to cover textbook expenses for individuals being treated for or who are survivors of childhood cancer. We are inspired by the opportunity presented by the RAREis Scholarship Fund to accelerate the aspirations of adults with rare diseases, and to showcase that the experience of rare disease does not have to limit ones dreams, he added. Program provides a one-time scholarship of up to $5000 to individuals living with epilepsy, their family members and caregivers. Must demonstrate a commitment to furthering LGBTQ+ visibility, diversity, and inclusion in the biosciences. Program offers scholarships to survivors of intimate partner abuse, pursuing an education. On Feb. 28, the top of Wells Fargo Tower in downtown Roanoke will be illuminated with a show of pink, green, purple, and blue. Program offers educational scholarships to people living with epilepsy or family members and caregivers of people with epilepsy. Website: bionews.com Disability Requiring Assistive Technology, Mobility Disability, Kellys Angels aims to restore fun and laughter to the lives of children who have lost a parent, primary caregiver or sibling to cancer, by providing grants for the activity of the childs choosing, Cancer - All in a loved one, Parent, Family Member, Loved One With Cancer, Terminal Illnesses. Research & Scholarship Overview; Patient Care Research. Browse the GARD list of rare diseases to find topics of interest. Parent, Family Member, Loved One With Cancer, Brain Cancer/Tumors. Program awards scholarships to men with hemophilia or von Willebrand disease, or to their immediate family members. A scholarship for young adults who have been affected by cancer and are seeking higher education. Bleeding/Clotting Disorders, Von Willebrand Disease, Hemophilia. The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience, said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. Programs provides an annual scholarship of $500 for up to 4 years, to a graduating high school student diagnosed with stickler syndrome. Program offers FREE college admission and financial aid counseling and advocacy service to pediatric cancer patients and survivors. Communication Disorders, Speech Impairment. Program provides scholarships for students with heart disease or deformities pursuing higher education. Provides educational scholarships to young adults with who are cancer survivor or current patients, and are pursuing their education. Scholarships are open to any adult living with a rare disease in the U.S. who is over the age of 17. Program provides scholarships to students who are legally blind and striving to obtain a college education. Scholarships awarded to two students with cystic fibrosis who are pursuing a career in the fine arts, graphics, music, singing, photography, filmmaking, writing, poetry, dance, theater, and other performance arts. Kidney Disease, Kidney Transplant, Urologic Disease. Military related, Veterans - Disability/Injured, Veterans - Disability/Injured-Families. Now, thanks to the #Rareis scholarship fund, we can help patients not just to live with their disease, but to thrive.. Program awards a scholarship to a college student who has been affected by Mesothelioma or any other cancer, either by their own diagnosis or that of a family member or friend. Provides a scholarship to individuals who have struggled with mental health challenges or substance abuse. A scholarship to help individuals with the financial funds to attend Indian Trails Camp. Scholarship awarded to a student seeking to attend law school who has been affected either directly by leukemia or lymphoma or by that of a family member. Bleeding/Clotting Disorders, Hemophilia, Von Willebrand Disease. Share this article: The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Scholarship assistance solely to Out Black lesbians over the age of 50 attending any technical, undergraduate or graduate school located in the United States. Authors feature an atypical case of COVID-19 presenting with a rare cause of abdominal pain and severe hyperglycemia. Program offers educational funding for cancer patients and cancer survivors to continue their education. Collapse All Expand All AAAI Scholarship AAHD Frederick J. Krause Scholarship on Health and Disability AbbVie Cystic Fibrosis Scholarship Annual Traumatic Brain Injury Scholarship Baer Reintegration Scholarship Burn Injury, Deceased Loved One, First Responders - Disabled/Injured/Deceased. Mary Chapman Psoriasis, Psoriatic Arthritis, Crohn's Disease, Ankylosing Spondylitis, Rheumatoid Arthritis, Uveitis, Ulcerative Colitis, Hidradenitis Suppurativa, Juvenile Idiopathic Arthritis. The amount available varies year to year. STUDENT SCHOLARSHIP PROGRAM FAQs Who is eligible for a student scholarship award? https://www.youtube.com/watch?v=F1E6yMXv-1U, Oxygenated hemoglobin may be prognostic marker in SSc: Study, Levels of 3 blood proteins help identify SSc progression risk: Study, The Autoimmune Slayers journey since her scleroderma diagnosis, Talaris stops 2 kidney transplant trials of cell therapy FCR001 in dcSSc, How I find my Zen while living with scleroderma, The uncertainty of scleroderma leaves me frustrated, overwhelmed, COVID-19 linked to reduced blood flow in girl with scleroderma, New study reveals mechanisms for UVA1 phototherapy in scleroderma, Scleroderma makes me feel like my body has betrayed me, FT011 safely eases SSc symptoms, aids lung health in Phase 2 Trial, EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US. Provides scholarship awards of up to $1000 to young college bound adults diagnosed with ADHD or other learning disabilities. An educational scholarship for a surviving spouse or child of a deceased service member from a service-related death or a veteran with a 100% service-connected disability. Primary Immunodeficiency, Bleeding Disorders, Cancers, Infertility, Hepatitis C, HIV Treatment/Prevention, Diabetes, Rheumatoid Arthritis, Multiple Sclerosis, Crohn's Disease, Asthma, High Cholesterol. Child with a parent or sibling who has or had cancer, Bereavement. Phone: 1-800-936-1363. An educational scholarship for an individual diagnosed with Autism Spectrum Disorder who intends to further his or her education at a college, junior college or vocational/trade school. Physical Disability, Cognitive Disability. A scholarship for adults with rare diseases in a variety of educational pursuits regardless of treatment status. All applications are de-identified prior to review, and will be evaluated using a scoring rubric by a panel of Sanofi employees who are familiar with the rare disease community but do not currently work in the space. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. The fund is open to individuals who have been diagnosed with a rare disease. Scholarships will be awarded on a first-come, first-served, as-needed basis . Program awards a scholarships to men with hemophilia pursuing higher education. Educational scholarship awarded to burn survivors who are former campers of Hoosier Burn Camp pursuing higher education. By Quinn Eastman Feb. 28, 2023. Applicants must plan to enroll full- or part-time in undergraduate or graduate study at an accredited two- or four-year college, university, or vocational or technical trade school next spring. Provides over 10 scholarships to students with learning differences who have proven financial need and other specific requirements. Research & Scholarship. Program awards a scholarship to high school seniors who use a cochlear Nucleus device pursuing higher education. This list includes both the main, and any alternate names for each disease. Awards a scholarship to students who are manual or power wheelchair users for pursuing higher education. Special Needs, Disabilities - All, Childhood Disability. Rheumatoid Arthritis, Multiple Sclerosis, Hepatitis C, Crohn's Disease. Program awards a scholarship to the immediate family member of a person with a bleeding disorder. The health information contained herein is provided for educational purposes only and is not intended to replace discussions with a health care provider. In the U.S., this means a disease that affects fewer than 200,000 residents at any given time. Program provides partial and full scholarships, and financial assistance to campers in need. Addiction, Alcohol dependence, Chemical Dependency or Substance Abuse. Bereavement, Military related, Disabled - Veteran. CHASA awards athletic scholarships to young athletes who have had hemiplegia since childhood to cover expenses for specific athletic competitions. Details Written: Monday, January 4, 2010 Available to students in every state in the continental U.S., the ChairScholars National Scholarship Program provides eligible high school seniors and college freshmen up to $20,000 for tuition to attend the college or university of their choice. Provides a one-time scholarship for cancer patients/survivors attending college. Provides financial assistance to individuals diagnosed with hemophilia A or B, including those with inhibitors (Factor VII or IX deficiency), or von Willebrand Disease. Childhood Cancer, Child with a parent or sibling who has or had cancer. Suite 700 by Veterans - Disability/Injured-Families, Military related. She began her career at United Press International, then spent a decade reporting for the Bureau of National Affairs, Inc. (now Bloomberg Industry Group). Awardees will be notified in October. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Provides a $2500 scholarship awarded to children of firefighters killed in the line of duty planning to attend a university, accredited college or other institution of higher learning. Program awards scholarship to men with hemophilia or von Willebrand disease, and their immediate family members pursuing higher education. Disability - Mobility, Disability - Cognitive, Disability - Developmental, Disability - Emotional, Disability - Intellectual, Disability - Mental, Disability - Physical, Special Needs, Asperger Syndrome, Learning Disability, Depression, Anxiety Disorders, Emotional Disability, Communication Disorders, Mobility Disability, Neurologic, Brain, and Seizure disorders. An educational scholarship for spouses and dependents of service members. Program awards scholarships to college students with dyslexia pursuing higher education. Lyme Disease, Chronic, Serious or Life Threatening Illnesses. Email: [emailprotected] Provides awards to individuals with Down syndrome ages 18 or older, who brings public awareness to their community. Bereavement, Cancer - All in a loved one, Childhood Cancer. Childhood Cancer, Parent, Family Member, Loved One With Cancer. All scholarship recipients will be selected by an EveryLife Foundation-appointed, independent board of reviewers. A scholarship for students with disabilities or injuries in need to financial assistance for educational purposes. Priority consideration will be given to members of a Students for Rare Club or Chapter and first- . Scholarship fund for college bound students of single parent homes due to a loss of a parent or guardian, due to breast cancer. In addition to a current transcript of grades and diagnosis verification form, applicants must submit an essay explaining their goals and how the scholarship would help achieve them. An educational scholarship for disabled military veterans enrolled at Texas A&M University. Program offers scholarships to students diagnosed with clinically significant bilateral hearing loss. NORD Leads the Way: 900+ Influential Rare Disease Stakeholders from FDA, Patient Organizations, and Industry Gather for #NORDSummit 2023 . Notify Me Interested in learning about additional scholarship opportunities? Program offers scholarships created to assist students who either have hemophilia or a similar bleeding disorder, or have a family member with a bleeding disorder. Program provides educational scholarships in the amount of $1000 each year to support students young adults who live with the ongoing challenges and complexities of hydrocephalus. Pensacola, FL 32502 August 19, 2020. Learning Disability, Dyslexia, ADHD, Autism. Program provides financial assistance to individuals with hemophilia for GED certification. Program awards a scholarship to men and women with hemophilia pursuing higher education. Applicants must accept their award by Friday . Program provides annual college scholarships to undergraduate students with a childhood diagnosis of Type 1 diabetes. Scholarship will be funding students who are blind or visually impaired, ages 10 to 18 years old would like to attend the Space Camp (SCIVIS). Program provides scholarships to students surviving breast cancer, or have a parent or guardian surviving breast cancer. This scholarship is for young women majoring in Business. Program provides financial assistance to help students affected by behavioral health issues move forward in their education. Provides college scholarships to talented athletes diagnosed with type 1 diabetes. This study was a retrospective review of MD patients in HK. Military related, Paralysis, Military wounded, Paralysis due to Spinal Cord and/or Brain Injury. A scholarship for high school seniors that are hard of hearing. She began her career at United Press International, then spent a decade reporting for the Bureau of National Affairs, Inc. (now Bloomberg Industry Group). Programs awards multiple $5000 scholarships to students in communication science master's or doctorate programs. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Program awards a scholarship to young cancer survivors. Program provides scholarships to further educational opportunities for children with cancer accepted to accredited collegiate studies. Chronic, Serious or Life Threatening Illnesses. Learning Disability, Speech and language Delays or Impairments. "We all have diagnoses, and we all have disabilities and abilities," said Stephanie DeLuca, an . The fund is to be used to subsidize soccer fees and other team expenses. Provides a scholarship to individuals that have been hurt in a car accident (in the Chicago area), or other types of personal injury situations and are struggling to keep up with medical bills and their day to day lives. A scholarship for college students with a medically recognized physical or mental disability. Scholarship offered to an individual or a close family member of an individual who has autism. To support people living with rare disease while navigating obstacles to education, we have partnered with the EveryLife Foundation for Rare Diseases to establish the #RAREis Scholarship Fund. Provides a scholarship to a high school, undergraduate or graduate student who has cerebral palsy. Awards scholarships to students diagnosed with Hemophilia, Von Willebrand disease or other bleeding disorder. Program offers scholarships to students living with Type 1 diabetes. 7/13/2020 10:57:33 AM . Autism, Asperger Syndrome, Pervasive Developmental Disorders. Coronavirus disease 2019 (COVID-19) is an emerging infectious disease caused by a newly discovered coronavirus that has reached pandemic proportions impacting millions globally. Program provides fellowships for deaf or hard of hearing students that have been accepted in an accredited graduate program in a college or university. Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. An educational scholarship for the children of military personnel who have been killed or permanently disabled in a combat mission or training accident. Provides scholarships to assist paralyzed veterans (or the spouse or dependent child of a paralyzed veteran) in reaching their post-secondary educational goals. Program provides scholarships to students diagnosed with down syndrome seeking higher education or post-secondary classes. Gastrointestinal Disorders, Cancers, Chronic, Serious or Life Threatening Illnesses. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Program provides scholarships to high school and college students who have a demonstrated learning disability of dyslexia, and who wish to pursue a career in science, technology, engineering and math (STEM). Share this article: The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Forming a new rare disease community. The information in this site does not constitute legal advice. Program awards a scholarship to student with cancer which resulted in delayed college entry. Program provides scholarships to students with a documented language-based disability. Program provides a scholarship of up to $500 to students diagnosed with cystic fibrosis. Scholarships that support completion of degrees by students with disabilities who need financial assistance at selected colleges and universities. The application deadline is August 28 at 3 p.m. CT. Scholarships are open to any adult living with a rare disease in the U.S. who is over the age of 17. Child with a parent or sibling who has or had cancer, Lymphoma - Various Types, Leukemia, Children/Families In Need. No Greater Sacrifice (NGS) is dedicated to the children of our nation's fallen and wounded Service members (post 9/11/01) by delivering scholarships and resources to improve their quality of life through the pursuit of higher education. Scholarships in the amount of $3000 to students with autism pursuing a post-secondary, undergraduate education or vocational-technical training, trade, technical or vocational school or a cooperative life skills program. It's part of an effort to shine a light on important but uncommon diseases in recognition of Rare Disease Day, which takes place annually on the last day of February. Program provides a scholarship to undergraduate and graduate college students diagnosed with a heart disease, and enrolled or accepted into an accredited college or university in the US. Autism, ADHD, Brain Injury, Deafness, Learning Disability, Spina Bifida, Bi-Polar Disorder, Cerebral Palsy. Cystic Fibrosis, Child with a friend or loved one with a chronic or serious physical illness. Program awards a scholarship to students with autism disorders pursuing higher education in a technology field. Contents may not be reproduced in any form except for personal use and may not be used on any other website without permission. Bleeding/Clotting Disorders, Von Willebrand Disease, Hemophilia . Program provides a scholarship award to a graduating high school senior with a documented learning disability (LD) and/or ADHD who will be enrolled in a full-time bachelors degree program in the fall. An educational scholarship awarded to hearing children of deaf adults to help them pursue their post-secondary education. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college . Browse by Disease. Scholarships to LGBTQ students currently enrolled in Science, Technology, Engineering, or Mathematics (STEM) or STEM-related teaching fields. August 20, 2020. Provides three $1000 scholarships to individuals impacted by hemophilia or other significant bleeding disorder. Program provides a financial award of up to $1000 annually to a high school senior with a language-related learning difference pursuing a career in the visual arts field. Program provides educational scholarships to students diagnosed with Hemophilia A or B. $3000 scholarships to students of color with autism pursuing a post-secondary, undergraduate education or vocational-technical training at a 2- or 4-year college; trade, technical or vocational school; or a cooperative life skills program. They must be enrolled full time sophomores or juniors at the time of application. Cancers, Cancer - All in a loved one, Childhood Cancer. An educational scholarship for college students with a family member or loved one suffering with a disability. In conclusion, this map helps build a foundation for bridging genome biology and medicine and enabling new biomedical discoveries by connecting existing resources and tools across the spectrum of rare and common disease. All other trademarks are the property of their respective owners. An educational scholarship for disabled service members and honorably discharged Gulf War veterans, or a spouse of a deceased service member and honorably discharged Gulf War veterans. A scholarship for youth ages 15 or younger that are diagnosed with autism to assist with costs for educational or recreational opportunities. $2,000 award and art performing and development opportunities for musicians with impairment sensory, physical, cognitive, learning, socio-emotional disabilities, ages 14-25 physical or mental and more. Provides scholarships to individuals with traumatic spinal cord injuries. Chronic, Serious or Life Threatening Illnesses, Chronic, Serious, or Life Threatening Illnesses in Children. This site is strictly a news and information website about the disease. Cancers, Parent, Family Member, Loved One With Cancer. An educational scholarship for students who are survivors of cancer or have an immediate family member that is a cancer survivor, or has passed away due to cancer. Program offers scholarships to young adults who have lost a parent or guardian to cancer, pursuing higher education. Chive Charities - The EveryLife Foundation for Rare Diseases - August 18, 2020. Educational scholarship awards of $2,500 to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency to further higher education. $2,500 scholarship awarded to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency to assist in college education cost. Diabetes, Diabetes - Type 1, Juvenile Diabetes, Diabetes-Juvenile. Program offers scholarship to an individual with Down syndrome pursuing their dream of entrepreneurship. This scholarship is for young women pursuing a STEM major. Patients were recruited through the Clinical Analysis and Reporting System (CDARS) using relevant keywords and/or International Classification of Diseases (ICD) codes listed in Additional file 1: Table S1.CDARS is a tool developed by the HK Hospital Authority . A scholarship for youth ages 15 or younger that are diagnosed with down syndrome to assist with costs for educational or recreational opportunities. Program offers scholarship to any girl who is motherless for any reason to assist in furthering their education goals. Applicants must plan to enroll full- or part-time in undergraduate or graduate study at an accredited two- or four-year college, university, or vocational or technical trade school next spring. Help filling out Prescription Assistance Program Applications, Assistance with Medical Transportation Costs, Connect with Retreats, Camps & Recreational Programs, Patient Assistance Program Update Service (PAPUS), Diagnosis Assistance Program Update Service (DAPUS), Patient Assistance Program Administration, Alexander Graham Bell Association for the Deaf and Hard of Hearing, American Association for the Advancement of Science (AAAS), American Association of People with Disabilities (AAPD), American Association on Health and Disability (AAHD), American Council of the Blind, Inc. - National Office (ACB), American Speech-Language-Hearing Foundation (ASLHF), Association for Education and Rehabilitation (AER) of the Blind and Visually Impaired, California Association for Postsecondary Education and Disability (CAPED), Camp Sertoma for Deaf and Hard of Hearing Children, Candlelighters of West Texas and Southern New Mexico, Children's Hemiplegia & Stroke Association (CHASA), Citizens United for Research in Epilepsy (CURE), Council of Citizens with Low Vision International, Cystic Fibrosis Lifestyle Foundation (CFLF), Cystic Fibrosis Scholarship Foundation (CFSF), Daughters of the American Revolution (DAR), Department of Military and Veterans Affairs, Diabetes Scholars Foundation - Beyond Type 1, From Tragedy to Triumph Foundation (FTTTF), Gallaudet University Alumni Association (GUAA), Georgia State Univeristy Disability Services, International Association of Fire Fighters (IAFF), International Essential Tremor Foundation (IETF), Jean Kennedy Smith Arts and Disability Program. 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